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CDO News

23
Dec

CDO’s Winter 2019 Newsletter

2019 has been a busy year for CDO! This year has brought an increased number of individuals and families to the group and we are so glad that they found CDO. We hope the information we provide is helpful and our community supportive. Due to the large number of new...
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08
Jul

Looking for the hidden mutation: Bannayan–Riley–Ruvalcaba syndrome 10q23 microdeletions

Looking for the hidden mutation: Bannayan–Riley–Ruvalcaba syndrome caused by constitutional and mosaic 10q23 microdeletions involving PTEN and BMPR1A Bannayan–Riley–Ruvalcaba syndrome (BRRS) is a genetic condition characterized by large head size, hamartomas, intestinal polyposis, and genital pigmentation. Intellectual disability is found is around half of BRRS patients as well. This disorder...
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26
Mar

Q&A: Special Needs Trusts

Q&A Special Needs Trusts (SNT) Special Needs Trusts (also called Supplemental Needs Trusts) are trust funds that are set up for the benefit of person with disabilities who qualifies for Supplemental Security Income or Medicaid. The purpose of the SNT is to provide for those “extras” that are not covered...
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