10
Apr
CDO’S Spring 2020 Newsletter
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CDO Supports Families… Always. CDO is here for you. These are stressful and uncertain times – made even more so for those with a chronic or rare disorder. Everything we relied on changed overnight, and we accept new ways of doing the most basic things. As we learn to live... Read More
23
Dec
CDO’s Winter 2019 Newsletter
2019 has been a busy year for CDO! This year has brought an increased number of individuals and families to the group and we are so glad that they found CDO. We hope the information we provide is helpful and our community supportive. Due to the large number of new... Read More
22
Aug
CDO Summer 2019 Newsletter
CDO Summer 2019 Newsletter – Rare Chromosome Disorder Support Network. CDO was recently contacted by the Chan Zuckerberg Initiative which among other programs has created the Rare As One Project. This project partners with the rare disease community to lift up patient-led research and provide support in the form of... Read More
23
Apr
Spring 2019 Newsletter – Issue No. 83
‘Seeing’ the first signs of Spring My daughter Elizabeth turned 27 in March. Along with coping with many other physical and medical challenges, Elizabeth is also visually impaired (see full issue for a resource that she really loves). Since she is non-verbal, it has always been difficult to determine the... Read More
19
Nov
Fall 2018 Newsletter – Issue no. 82
Fall 2018 Newsletter Letter from the Board: Hello everyone! CDO needs your help. Our team works hard all year to provide the most accurate and updated information possible on rare chromosome and gene disorders to individuals and families. We are sometimes able to find information even when others cannot. From... Read More
