22
Aug
CDO Summer 2019 Newsletter
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CDO Summer 2019 Newsletter – Rare Chromosome Disorder Support Network. CDO was recently contacted by the Chan Zuckerberg Initiative which among other programs has created the Rare As One Project. This project partners with the rare disease community to lift up patient-led research and provide support in the form of... Read More
23
Apr
Spring 2019 Newsletter – Issue No. 83
‘Seeing’ the first signs of Spring My daughter Elizabeth turned 27 in March. Along with coping with many other physical and medical challenges, Elizabeth is also visually impaired (see full issue for a resource that she really loves). Since she is non-verbal, it has always been difficult to determine the... Read More
19
Nov
Fall 2018 Newsletter – Issue no. 82
Fall 2018 Newsletter Letter from the Board: Hello everyone! CDO needs your help. Our team works hard all year to provide the most accurate and updated information possible on rare chromosome and gene disorders to individuals and families. We are sometimes able to find information even when others cannot. From... Read More
28
Jun
Summer 2018 Newsletter – Issue No. 81
Hello everyone! 2018 is CDO’s 26th year of providing support for all those coping with a rare chromosome disorder diagnosis. We hope you will visit our website to learn more about the many ways CDO helps individuals and families. And while there, please also check out our You Can Help... Read More
10
Apr
Spring 2018 Newsletter – Issue no. 80
Hello everyone, Spring is finally here and summer not far behind. And in just a few months, Rare Chromosome Disorder Awareness Week (June 17th – June 23rd) will be here too! Our theme this year is Help Us to Soar. Help CDO raise awareness and understanding of chromosome disorders. Our... Read More
