09
Dec
Darius Jackson – chromosome 13q deletion diagnosis – his story
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Darius’ Story Darius Jackson is my 29 year old young adult son born with Chromosome Deletion 13q 31-32. Shortly after his birth, my husband and I were given his chromosome disorder diagnosis. I remember that moment as it was yesterday, but I can’t tell you all that was said after... Read More
21
Jun
Meet one of CDO’s Founders and her daughter, Tylermarie
I am so glad CDO is still going strong. 28 years ago I too had a child with a chromosome disorder (7 Q-) and was thrown into a unfamiliar world. Myself & a handful of other moms in all different states started CDO. We had a newsletter and weekly conversations.... Read More
19
Jun
The Quest for a Diagnosis – Emily Wachter – 3q29 deletion
The quest for a diagnosis has been a recurrent theme in my daughter’s life. She is 21 now, legally an adult, but she will forever be a woman-child. I knew something was wrong with Emily when she was an infant. She was difficult to feed as an infant, never... Read More
27
Feb
Kenzie Kauble – a glimpse into an amazing child’s life
Kenzie Kauble’s Story: when we decided to have our second child we went through all the standard tests, ultrasounds, and doctor appointments. It was a normal pregnancy and delivery with no complications. We brought our beautiful daughter Kenzie home and noticed she was a rather fussy baby. In fact, she... Read More
23
Aug
Gracyn’s Story
My daughter Gracyn was born August 11, 2014. We knew something wasn’t going to be right from the time I was 16 weeks pregnant, the perinatologist told us that she had a bright spot on her heart, which was an indicator for Down Syndrome. We went forward with Harmony testing... Read More
