Privacy & Disclaimer

Chromosome Disorder Outreach, Inc. (CDO) is a non­profit (501C3) organization providing emotional support and information to individuals, families and other caregivers coping with a rare chromosome disorder diagnosis.

Every effort is made to provide the most accurate and timely information possible on this website. However, research is always ongoing and additionally case reports and genetic journal articles may describe the findings in only a few persons with a specific deletion, duplication, translocation, inversion, ring or other chromosome disorder. The symptoms discussed in any article may or may not apply to a particular individual. Furthermore, the information contained on the CDO website, in our newsletter and in any electronic or regular mailing is to be used for informational, supplemental and educational purposes only.

We will occasionally publish on our website frequently submitted website questions and answers in our new CDO Ask the Doctor section. Please refer to this section first ­ the answer you are looking for may be found there.

It is not a substitute for professional medical care and advice. We urge you to always check with your own healthcare provider with any questions or concerns. He or she is most familiar with your medical history and unique situation. CDO¹s directors, volunteers and medical advisors cannot know the intricacies of your personal situation.

CDO does not endorse or recommend any of the outside resource links provided on this site. When you click on any of these resource links you will be leaving the CDO website. These links are provided for additional informational purposes only.

The board of Chromosome Disorder Outreach, Inc. (CDO) releases its members’ names and contact information only to other CDO families as each member/family requests and only through our networking programs. CDO does not release contact information for site visitors or members in any format to any third parties. Medical and developmental data is never released in any identifiable format. If you wish your contact information to remain private and not released to others, please be assured your request will be honored. Opt out options are easily accessible. We respectfully request that anyone visiting our website and Facebook pages, honor our strict no solicitation policy. We feel very strongly that each member’s privacy be protected. All information contained on application forms is kept strictly confidential and is stored offsite.

All information on the CDO website is copyrighted by Chromosome Disorder Outreach. Inc.  Unless otherwise noted, please request permission to reprint or electronically reproduce any document in whole or in part.

Please address any questions or concerns regarding our privacy policy to info@chromodisorder.org