Tag

chromosome disorders

30
Jan

Haydn Kirkwood Kramer in Memoriam

Haydn Kirkwood Kramer May 02, 1991 – January 22, 2020 You came into this world on a warm spring day in May. Life was a challenge from the beginning. Unable to breathe on your own, you were resuscitated only to be whisked away to the NICU less than 24 hours...
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20
Aug

CDO’s Summer 2020 Newsletter

CDO’s Summer 2020 Newsletter is now available! Each issue contains detailed and new information on rare chromosome disorders. The CDO newsletter includes family stories, additional resources, Ask the Doctor, new research updates and more. To submit an article, story or other item of interest for an upcoming issue email info@chromodisorder.org...
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22
Aug

CDO Summer 2019 Newsletter

CDO Summer 2019 Newsletter – Rare Chromosome Disorder Support Network. CDO was recently contacted by the Chan Zuckerberg Initiative which among other programs has created the Rare As One Project. This project partners with the rare disease community to lift up patient-led research and provide support in the form of...
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