Tag

genetic disorders

25
Mar

Chromosome Disorder Outreach Winter – Spring 2021 Newsletter

Chromosome Disorder Outreach’s Winter-Spring 2021 Newsletter is now available! Each issue contains detailed and new information on rare chromosome disorders. The CDO newsletter includes a family spotlight, additional resources, Ask the Doctor, new research updates and in this issue information on rare chromosome disorders and COVID-19 vaccines. Download the full...
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30
Jan

Haydn Kirkwood Kramer in Memoriam

Haydn Kirkwood Kramer May 02, 1991 – January 22, 2020 You came into this world on a warm spring day in May. Life was a challenge from the beginning. Unable to breathe on your own, you were resuscitated only to be whisked away to the NICU less than 24 hours...
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07
Nov

CDO Fall 2020 Newsletter

CDO’s Fall 2020 Newsletter is now available! Each issue contains detailed and new information on rare chromosome disorders. The CDO newsletter includes a family spotlight, additional resources, Ask the Doctor, new research updates and in this issue an excerpt from a new book Raising a Rare Girl by Heather Lanier....
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20
Aug

CDO’s Summer 2020 Newsletter

CDO’s Summer 2020 Newsletter is now available! Each issue contains detailed and new information on rare chromosome disorders. The CDO newsletter includes family stories, additional resources, Ask the Doctor, new research updates and more. To submit an article, story or other item of interest for an upcoming issue email info@chromodisorder.org...
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23
Apr

Spring 2019 Newsletter – Issue No. 83

‘Seeing’ the first signs of Spring My daughter Elizabeth turned 27 in March. Along with coping with many other physical and medical challenges, Elizabeth is also visually impaired (see full issue for a resource that she really loves). Since she is non-verbal, it has always been difficult to determine the...
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