rare chromosome disorders


CDO Winter 2023 Newsletter

CDO Winter 2023 Newsletter now available! The CDO newsletter includes a family spotlight, additional resources, media corner and Ask the Doctor. Additionally, new research synopses, such as the following on 9p deletion, are detailed in each issue – 9p deletion syndrome is a rare autosomal dominant disorder characterized by a...
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CDO Parent and Caregiver Meet-up this Thursday March 10 2022 8 PM Chromosome Disorder Outreach is inviting you to a scheduled Zoom meeting. Each month CDO holds a parent and caregiver meeting via zoom. We share information about our children and the challenges raising a child with a rare disorder...
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CDO Fall 2020 Newsletter

CDO’s Fall 2020 Newsletter is now available! Each issue contains detailed and new information on rare chromosome disorders. The CDO newsletter includes a family spotlight, additional resources, Ask the Doctor, new research updates and in this issue an excerpt from a new book Raising a Rare Girl by Heather Lanier....
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Spring 2019 Newsletter – Issue No. 83

‘Seeing’ the first signs of Spring My daughter Elizabeth turned 27 in March. Along with coping with many other physical and medical challenges, Elizabeth is also visually impaired (see full issue for a resource that she really loves). Since she is non-verbal, it has always been difficult to determine the...
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